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Just Getting Started?

Helpful Resources 


Need a little more help?  Ask an Advocate and make the journey a little easier.

You are not alone - Information for Parents

A helpful resource for parents who have recently learned that their child has a disability. It is written from the personal perspective of a parent who has shared this experience and all that goes with it.

from the Center for Parent and Information Resources

Are You in Crisis?  Find Help Now!

Non-judgmental support to help you or your loved one through your crisis.  Here are links to counselling, information and referral and a warm line staffed by individuals with lived experience who provide nonjudgmental, nondirective support to an individual experiencing a crisis.

from the Iowa Department of Human Services

Care Plans for Children with Special Needs

A care plan is a way to share information about your child with others. The plan is written information about how to best care for your child’s health needs. You and your child’s doctor can develop the care plan together.

from the Center for Children with Special Needs

Care Notebooks - Important Information from Families

Family members are the primary caregivers and support in a child’s life. Practices and health care organizations that are truly family-centered provide care in equal partnership with families, caregivers, and children.  This page includes tools, resources, and links to information that will assist families in successfully partnering with their child’s medical home.

from the National Resource Center for Patient/Family Centered Medical Home

Iowa Community Resources - A guide for individuals with disabilities, their families, guardians and friends 

This guide is designed as a resource to individuals with intellectual or developmental disabilities, and their guardians and family members, in finding the information and supports they may need. It may also be helpful to stakeholders throughout the Iowa service delivery system to better identify and address gaps in resources, or otherwise assist persons living at Woodward or Glenwood State Resource Center or in the community in accessing needed services and supports. Please share this guide with anyone who may benefit from its contents.

from the Iowa Department of Human Services

At the Hospital? - A guide for helping your children cope with emergency hospital care.  

Traumatic stress symptoms are common after a serious illness, injury, or hospitalization. Even though it is your child who is ill or injured, your whole family can be affected. It's normal for you, as a parent, to feel overwhelmed or unprepared to help your child (or yourself) cope.

from the National Child Traumatic Stress Network

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