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The Arc promotes and protects the human rights of people with intellectual and developmental disabilities, actively supporting them and their families in a lifetime of full inclusion.

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Arc Advocacy - Managed Care Organizations

Posted on September 4, 2019 at 6:40 PM Comments comments (1)

The Arc of Iowa Board of Directors and I would like to thank Liz Matney for taking the time to meet with us, listen to concerns over issues relating to the implementation of Managed Care and how it is affecting individuals with Intellectual and Developmental Disabilities.  The Arc of Iowa is an advocacy organization that supports individuals with Intellectual and Developmental Disabilities and we have been hearing that their are many challenges in the system from our local members. 

In response to the article in the Bleeding Heartland Blog, we would like to re-state our impressions of the meeting.  We did not feel that Liz or the Governor were claiming ignorance to the issues but that they have not been hearing from families that their needs are not being met by managed care.  Since the meeting we released a statement outlining what was said at the meeting and recommending how you can improve the system if you are not getting results after working with your Managed Care Provider. 

We have found Liz to be responsive and willing to assist individuals with disabilities, families and/or care providers in finding results.  We stand behind our press release and advocate that individuals who are not getting results through regular manage care channels reach out to Liz, your local legislator and advocacy organizations to support you in accessing the services that you need.  

You may read the contents of the story and our press release here.  

https://www.bleedingheartland.com/

2019 TOGETHER WE CAN CONFERENCE

Posted on May 29, 2019 at 8:15 AM Comments comments (0)

Together We Can Conference

The conference was held on Saturday, May 4, 2019 at the Iowa State Fairgrounds and presented by ASK Resource in partnership with The Arc of Iowa, Iowa Department of Education, Iowa Statewide Independent Living Council, University of Iowa Center for Disabilities & Development.


Opening remarks & keynote introduction was given by a family with three children, one who is deaf. It was inspiring to hear of their goal to make sign language classes available to families in their community held at public libraries. During the lunch break an option to sit in on a discussion of how those interested could make this an option in their community and network as parents of children with hearing loss.


Keynote speaker was LeDerick Horne who spoke of his own learning disability diagnosed in the third grade. He presented Seven Tips to Support and Empower Each Other. He shared moving verses, funny stories, and information to prepare the audience to challenge stereotypes and support the needs of people with disabilities.


Breakout sessions are put in four categories: self-advocacy, family advocacy, health & well-being, and disability law. Those attended by myself and husband, while we took advantage of our daughter being in the day care so we could focus on the various topics, were:

• Self-Advocacy: What Is It and How Does it Work? LeDerick Horne, Public Speaker & Poet This workshop introduces participants to the concept of self-advocacy. A set of core principles will be shared to help students communicate to others what they want and what they need. Through small group work, participants will see how self-advocacy works in a variety of settings such as college, the work place, and at home.

• Sensory Kids: Making Sense of Sensory Processing Teresa Grueter, Occupational Therapist Kids with Sensory Processing Disorder experience too much or too little stimulation through their senses. How do you know if a child is experiencing “too much” or “too little” sensory stimulation? Join this session to gain knowledge and understanding about kids with Sensory Processing Disorder (SPD). Practical sensory tips will be shared and your questions are welcome!

• It's Your Story! Own It John Derryberry, Public Speaker & Storyteller Everyone has a story with the potential to inspire others. The question becomes “how do we craft a story revealing our powerful authentic self?” Not a traditional speaker that gave you tips, but a reminder to tell your story your way!

• Cultivating Mindfulness at Home Amy Jenkins, Educator & Yoga Instructor During this session, staff from Challenge To Change Inc. will share five parts of practice on how to use yoga and mindfulness with children at home.

• Managed Care: Lessons from Across the States Rachel Patterson, Senior Director, Government Relations & Advocacy This session will provide an overview of managed care across the states and perspectives on how lessons learned can inform work in Iowa. I appreciated the honesty of this speaker and how Iowa really is in bad shape and how going forward we can focus on making sure that we tell our stories and document as the road ahead will be rough.

My family has attended this conference for at least the past five years and appreciate the topics and having a chance to learn in an environment that has our family as the focus and how to better advocate for our daughter.

Provided by Lonnie Polok, Parent and Board Secretary of The Arc of Cedar Valley

2019 MAKE YOUR MARK! CONFERENCE: LEADING THE WAY // EXHIBITORS AND SPONSORSHIP INFORMATION

Posted on May 28, 2019 at 1:15 PM Comments comments (0)

Attention: Exhibitors! We have started planning for our 2019 Make Your Mark! Conference taking place in Coralville, Iowa. The Iowans with Disabilities in Action Make Your Mark! Conference is targeted at Iowans with disabilities who want to be more involved in advocacy at a local, state or federal level. While we anticipate parents and family members, caregivers and direct support staff, service providers and others affected by disability will attend the conference, the primary target audience is Iowans with disabilities.


Here are a few reasons why you should choose to exhibit with us: Connect with more than 100 individuals with disabilities, direct service providers and family members. You will be listed in the conference program and on the registration website. One complimentary registration and one discounted registration will be included. You will be visited by attendees during four 30-minute exhibit breaks, and you will have an hour and a half of exhibition time during registration.


Here are the exhibit booth costs: $75.00 for a self-employed individual with a disability, $175.00 for a nonprofit organization and $300.00 for a for-profit organization. Interested in being a sponsor? We offer a variety of sponsorship opportunities, all of which include exhibiting space! Sponsorship packages range from $1,000-$4,500 and include the following (depending upon price level of sponsorship package): Two complimentary conference registrations, recognition as a kickoff reception sponsor, linked logo on all e-communications and more.


Registration will open July 1. Visit www.idaction.org for more information. Limited exhibitor space will be available.


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